Duchenne and progressive degenerative diseases


The parent of a child suffering from a progressive degenerative disease may be entitled to a disabled child allowance from age 91 days to 18 years and three months, provided that he meets the basic requirements.
Since a degenerative disease is characterized as a progressive illness, entitlement is determined based on the spread of the disease and the child's functioning:

  • If clinical signs and diagnosis exist - entitlement is established at 50% for supervision need.
  • If the child is under medication, such as steroids or cardiotonic steroids - entitlement is established at 100% for medical treatments.
  • If the child is in advanced stages of the disease, and absolutely requires the help of others in activities of daily living - entitlement is established at 188% for dependence on the help of others.

Documents to be submitted   

  • Claim Form for Disabled Child Allowance (fill and send the form on-line / download the form).
  • Updated medical certificate regarding the child's medical and functional condition, mentioning medical history, type and frequency of treatment received.
  • Follow-up report from the neurological clinic

Attaching all above documents to the claim will enable us to determine the allowance eligibility without summoning the child to appear before the Medical Board.

Should eligibility be established upon the documents, your right to require, within 45 days, an examination by the Medical Board in presence of the child is reserved.

Benefit rates

Benefit rate for a child with progressive degenerative disease depends on the entitlement determined according to the state of the disease and the child's functioning, as defined above, and is as follows:

  • Entitlement of 50% - Benefit rate amounts to NIS 1,771 .
  • Entitlement of 100% - Benefit rate amounts, with the additional monthly pension, to NIS 3,479 .
  • Entitlement of 188% - Benefit rate amounts, with the additional monthly pension, to NIS 6,542 .

The benefit is paid retroactively for up to one year prior to the date of claim submission.

For further information on benefit payment, click here.

Important

  • You are entitled to receive, free of charge, advice and preparation for appointments at the Medical Board provided by "Helping Hand" centers
  • A child suffering from impairments in the legs may be also entitled to mobility benefits.
  • It is recommended to read further on developmental delay (until age 3). It is important to note that this type of benefit requires the medical examination of the child by the Medical Board.
  • The parent of a child suffering from several impairments which grant entitlement to a 50% allowance, is entitled to a larger allowance at 100% rate - for more information, click here.
  • If you were summoned to appear with your child before a Medical Board and your child does not require assistance for everyday functions – you may request these activities to be excluded from examination.
  • Prior to the Medical Board, it is recommended to prepare a list of your child's medical problems, and to indicate, during the Board, how these medical problems affect the functioning of the child and his parents.
  • Receiving a disabled child allowance entitles to benefits from other institutions and organizations.

Benefit rate as of Jan 01, 2024

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