Rare syndrome


The parent of a child suffering from a rare syndrome creating heavy care burden, may be entitled to a disabled child allowance from age 91 days to 18 years and three months, provided that he meets the basic requirements.
The benefit is granted when illness frequency among the population is below 1:100,000 and, in addition, there is a heavy burden on parents as a result of this illness.

Click here for a list of diseases considered as rare syndromes.

If this syndrome does not appear on the list and you hold a document detailing diagnosis and its rarity, you must attach this document to the claim and mention that you are demanding addition of this syndrome to the list.

Documents to be submitted

  • Claim Form for Disabled Child Allowance (fill out and send the form on-line / download the form).
  • Updated medical certificate about the child's medical condition and functioning.
  • Genetic testing of the child.
  • Certificates about treatments given to the child and their frequency.

Important to know!

  1. Attaching comprehensive documents to the claim will allow us to examine the child's eligibility for the allowance without summoning him or her before the board.
  2. It is important to bring up-to-date medical documents from the past year regarding the child's medical and functional condition, to let us also verify allowance eligibility for a retroactive period of up to 12 months.
  3. If eligibility is determined on the basis of the documents, the possibility of requesting, within 45 days, to be examined by the board in presence of the child will be retained.

Benefit rates

A child eligible for an allowance due to a rare syndrome, is entitled to a benefit rate of 100% and the additional monthly pension, which amount overall to NIS 3,694 .
The benefit is paid retroactively for up to one year prior to the date of claim submission.

For further information on benefit payment, click here.

Important

  • You are entitled to receive, free of charge, advice and preparation for appointments at the Medical Board provided by "Helping Hand" centers.
  • It is recommended to read further on  developmental delay (until age 3) and on child depending on the help of others in activities of daily living (from age 3). It is important to note that these types of entitlements require the actual examination of the child by the Medical Board.
  • If you were summoned to appear with your child before a Medical Board and your child does not require assistance for everyday functions – you may request these activities to be excluded from examination.
  • Prior to the Medical Board, it is recommended to prepare a list of your child's medical problems, and to indicate, during Board, how these medical problems affect the functioning of the child and his parents.
  • Receiving a disabled child allowance entitles to benefits from other institutions and organizations.



Benefit rates as of Jan 01, 2025

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